Brain Tumour UK Leaflets
Brain Tumour UK has a series of leaflets on brain tumours and their treatment, available for patients and caregivers. We thank Brain Tumour Action for kindly permitting us to co-produce this series of leaflets.
Booklets |
Downloads |
|
| Living with a Brain Tumour | RTF | |
| Brain Tumours and Epilepsy | RTF | |
| Radiotherapy for Brain Tumours | RTF | |
| High Grade glioma brain tumours | ||
| Low Grade glioma brain tumours | ||
| Chemotherapy for brain tumours | ||
| Pituitary Tumours | ||
| Meningioma | ||
Click here to request any of these in hard copy
Other Information
- Brain Tumour- A guide for patients and carers - The Brain & Spine Foundation
Available through their website www.brainandspine.org.uk or by calling them on 0808 808 1000.
- Returning to School A teachers' guide for pupils with a brain tumour
- Brain Tumour Resource Handbook (adult and pediatric versions available) - Brain Tumour Foundation of Canada.
Available through their website www.braintumour.ca
- A Primer of Brain Tumours - American Brain Tumour Association.
Available to download or order through their website www.abta.org
- Headstrong: All about Brain Tumours- Brain & Spine Foundation.
This is an excellent resource book for children with a brain tumour and is available through www.brainandspine.org.uk/information/headstrong/ or by emailing headstrong@brainandspine.org.uk
- Travel insurance - more...
- Mobility aids - A useful website showing a wide range of daily living aids which patients and their carers may find useful. See www.welcomemobility.co.uk
Support services information
Macmillan Cancer Support and Cancerbackup each provide invaluable information about cancer support services. Visit them on www.macmillan.org.uk and www.cancerbackup.org.uk
Cancerbackup has recently launched the first nationally available audio tapes series for people affected by cancer. The tapes are free of charge to anyone affected by cancer, their families, carers and friends.
One of the first titles to have been produced is an audio version of 'Understanding Brain Tumours'. The series also includes a range of titles which can offer support for other aspects of cancer, such as managing fatigue or pain and coping with the emotional and physical effects of cancer.
A full list of audio titles and details on how to order is available from their website or by calling Cancerbackup on 020 7696 9003.
Neurological services information
Getting the Best from Neurological Services:A Guide for people affected by conditions of the brain, spine and nervous system
This is an excellent guide produced by the Neurological Alliance to help you navigate your way through your treatment and care and get the help you need. Available to download from their website at www.neural.org.uk or by emailing info@neural.org.uk.
Financial benefits information: A better deal
More than £126.5 million in disability benefits is going unclaimed by people diagnosed with terminal cancer in the UK according to a report by Macmillan Cancer Support.
Macmillan's findings relate to unclaimed Disability Living Allowance (DLA) and Attendance Allowance (AA) by people diagnosed with terminal cancer. Terminally-ill cancer patients automatically qualify for DLA and AA, yet millions may be going unclaimed by people who do not have a terminal diagnosis but find claiming benefits more stressful than having cancer itself! They may also be entitled to other benefits such as housing benefit, council tax benefit, income support or Carer's Allowance.
Macmillan has information available to download from their website at www.macmillan.org.uk/abetterdeal or call Macmillan free on: 0800 500 800.
Support for children
"I think Headstrong is fantastic and I only wish it had been available when my daughter was diagnosed."
Mother of a child with a brain tumour
Headstrong - all about brain tumours is a colourful child-centred resource produced by the Brain and Spine Foundation, who provide information and support for children and adults with neurological conditions.
Headstrong aims to help children find out more about their condition, cope with their treatment and lessen their anxiety. The Foundation worked with an advisory panel of expert individuals and organisations including Great Ormond Street Hospital , paediatric oncologists, play specialists, medical writers, children's writers and graphic designers. Importantly, they also involved a reference group of children (all of whom had experience of living with a brain tumour) who were responsible for influencing the content and presentation.
There are two booklets, one for children aged 7-9, the other for those aged 10-12. There is also a CD-Rom and a website with interactive games and message board: www.headstrongkids.org.uk
To find out more about Headstrong and to order copies of the resources, see www.brainandspine.org.uk/information/headstrong/ or email headstrong@brainandspine.org.uk
