Living with a brain tumour - an introduction
An introduction to living with a brain tumour
Diagnosis - your initial reaction
Shock, fear and despair are some of the typical reactions to being diagnosed with a brain tumour.
The panic and anxiety you may feel is a natural response, affecting not only you but those close to you. There will have to be some changes in your daily routines and responsibilities and it will be easier if everyone involved understands what is going on and why.
Quick facts about brain tumours
Almost half of all brain tumours are non-cancerous and, if located favourably, can be removed by surgery. Many brain tumours that are found and treated early cause little or no permanent damage to mental or physical abilities.
Many others can be treated with surgery, radiotherapy and other therapies, resulting in prolonged life and a considerable amount of enjoyable time.
Each year, more progress in research and treatments are made.
Common periods of emotional stress
We know from listening to people diagnosed with brain tumours that these periods caused them the greatest emotional stress:
- From suspicion of illness to diagnosis
- Immediately after completion of treatment
- Having any repeat scan, or follow up doctor visit.
Where to get information
A vital step in coming to terms with your diagnosis, is to get accurate and understandable medical information about your tumour and your treatment options. Being able to participate in decisions about your treatment and care can help you feel more in control and less helpless. Ask your healthcare team to give you contact details for your key worker (this is likely to be a specially trained nurse or a doctor.)
Online, you will find a large amount of information about your condition and how to deal with it. Friends and others will also offer information. Choose the information carefully, looking for evidence that it is based on good quality research from reputable people.
