A Selection of Useful Links
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We have included a small selection of links that we feel are informative and useful. If you
have found any other web sites particularly helpful why not let us know - feel free to
email us |
Ableize Disability Resources Directory - www.ableize.com |
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Ali's Dream- funding research into Childhood Brain Tumours -
www.alisdream.org.uk |
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Al Musella's List of Clinical Trials and Noteworthy Treatments for Brain Tumors -
www.virtualtrials.com A comprehensive site which gives information for newly diagnosed patients and those who wish to know more. Updated regularly with breaking news and treatments |
| American Brain Tumour Association - www.abta.org An independent, global association making an impact by funding research and providing information and publications for patients to make informed decisions about their treatment |
| Andreas Gift - www.andreasgift.org.uk Raising awareness and funds for research into the treatment of childhood and adult brain tumours |
| Association of Charity Officers -
www.aco.uk.net Provide financial assistance |
| BioOncology On line - www.biooncology.com New site under development to help health professionals stay current with latest treatments and research and gives links to other useful sites. |
| Brain and Science Foundation -
www.brainsciencefoundation.org |
| Brain and Spine Foundation - www.brainandspine.org.uk Provides high quality up to date impartial information on neurological conditions |
| Brain Tumour Australia inc -
www.ozbraintumour.org Serving people whose lives have been affected by tumours of the central nervous system. Promoting international collaboration between brain tumour support and advocacy groups |
| Brain Surgery Information Centre - www.brain-surgery.com Provides everything you want to know about Brain and Neurosurgery - almost |
| Brain Tumour Action - www.braintumouraction.org.uk Charity providing support services to patients with brain tumours and their carers - offers information and links |
| Brain Tumour Research Campaign- www.wayahead-btrc.org Raising awareness of the need for brain tumour research and the lack of funding. |
| British Pain Society - www.britishpainsociety.org The representative body for all healthcare professionals and scientists involved in the management, understanding & research of pain and pain management. The society provides an information pack to patients, including a list of local pain clinics. |
| Cancer Active -
www.canceractive.com Provides information currently available from published scientific sources around the world so that people wanting to beat cancer can make better informed choices. |
| CancerBACUP - www.cancerbacup.org.uk |
| Provides high quality and up to date information, practical advice and support for cancer patients and their families |
| CancerHelp - www.cancerhelp.org.uk Is a free information service about cancer and cancer care for people with cancer and their families, brought to you by Cancer Research UK |
| Cancer Information and Support International - www.cancer-info.com Provide publications on cancer information, alternative treatments and treatment information |
| Cancer Links: Cancer clinical trials - www.cancerlinks.com/clinical_trials.html Gives clinical and drug trial articles and information |
| Cancer Links: Chemotherapy - www.cancerlinks.com/chemotherapy.html Gives information on chemotherapy and drugs for cancer treatment |
| Cancer Links: Cancer Genetics - www.cancerlinks.com/genetics.html Gives links to cancer genetics and risk assessment sites |
| Contact a family - www.cafamily.org.uk Is the only UK charity providing support and advice to parents, whatever the medical condition of their child. |
| Cancer VOICES -
www.cancervoices.org.uk Wide network of people affected by cancer who are helping to shape the future of cancer care supported by Macmillan Cancer Relief |
| Charlies Challenge - www.charlieschallenge.com Charlie's Challenge undertakes fundraising for brain tumour research. |
| Cancer Counselling Trust - http://www.cancercounselling.org.uk The Cancer Counselling Trust offers free specialist telephone counselling across the UK for cancer patients, their families, friends and care givers to help them through the difficult issues precipitated by a cancer diagnosis. |
| Ellies Trust - www.elliestrust.org A site set up in memory of Ellie Savage who died at the age of 14. Their aim is to help children living with cancer and their families by giving financial support, providing clear concise information, as well as funding the desperately needed research into brain tumours. |
| Hammer Out - www.hammerout.co.uk Set up in memory of Paul Mitchell, this is a community site, to help you learn more and get connected to other people with brain tumours and their carers in the South West. |
| Luke Frost Brain Tumour Research Fund - www.lukefrostgames.co.uk |
| Charitable fund to aid research into childhood brain tumours. Holds an annual fundraising event 'The Luke Frost Games' |
| Macmillan Cancer Suppport - www.macmillan.org.uk Working for the best information, treatment and care for people with cancer in the UK |
| Maggie's Cancer Caring Centres - www.maggiescentres.org Aim to help people to adjust to living with cancer. They are open to anyone, whether they are diagnosed with cancer, or a family member, friend or carer. |
| MeningiomaUK - www.meningiomaUK.org Dedicated to giving help and information to people diagnosed with this type of tumour |
| National Cancer Institute - www.nci.hih.gov Provides wide ranging information on cancer treatment, research and funding programmes, clinical trials and statistics |
| Neurological Alliance - www.neural.org.uk The Neurological Alliance enables charities to work together to improve the quality of life for all those in the UK living with a neurological condition |
| NHS patient choices - http://www.nhs.uk/ |
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Nutrition in Cancer - http://www.nutritionincancer.co.uk An interactive website with information and special tools to highlight the importance of nutrition in cancer, supporting cancer patients throughout their journey. |
| Parent UK - www.patient.co.uk A directory of UK health, disease, illness and related medical websites that provide patient information |
| Pediatric Brain Tumor Foundation (USA) - www.pbtfus.org |
| Samantha Dickson Brain Tumour Trust - www.sdrt.co.uk Raises funds to aid research into brain tumours to find a cure - offers support and information. Is probably the largest laboratory based research charity in the UK , having raised £2 ½ million they have sponsored 12 projects since their formation. One of the projects has now gone to clinical trial. Please see SDRT site for more information |
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The International Brain Tumour Alliance -
www.theibta.org This international alliance was established at the conference of the World Federation of Neuro Oncology in May 2005. IBTA is an alliance of the support, advocacy and information groups for brain tumour patients and carers in different countries and also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours. |
| The Katie Trust -
www.katietrust.org Was set up to further research into cancers which affect children, and to brighten the lives of youngsters with cancer, and their families. More than £180,000 has been raised in memory of Katie to help other youngsters with cancer and to step up the battle to develop a cure. |
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The Princess Royal Trust for Carers - www.carers.org The Princess Royal Trust for Carers supports people who provide unpaid care to family, partners or friends in need of help because they are ill, frail or have a disability. For a Carers' Centre in your area, you can contact the Princess Royal Trust for Carers at their London office on 020 7480 7788. |
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The United Brain Tumour Campaign - www.ubtc.org.uk The UBTC is a group of UK Brain Tumour Charities working together with patients, carers, professionals, families and friends to raise public awareness and increase funding |
| VOCAL - Voice of Carers Across Lothian - www.vocal.org.uk The Princess Royal Trust VOCAL Carers' Centre supports carers in Edinburgh and the Lothians, that is people who provide unpaid care to family, partners or friends in need of help because they are ill, frail or have a disability. For a Carers' Centre in Scotland, you can contact their Glasgow office on 0141 221 5066. |
