Campaign partnerships
By campaigning in partnership with others, Brain Tumour UK is able to reach and influence more policy makers and other key decision makers than if it worked alone. Keep up to date with our partnerships here.
Cancer Campaigning Group
Brain Tumour UK is a member of the Cancer Campaigning Group (CCG). The CCG is a coalition of national cancer-related charities representing service providers, research, advocacy and campaigning groups for cancer patients and their families. Founded in 2002, it enables cancer charities to speak and campaign with a single unified voice.
The aim of the CCG is to campaign for improved cancer policy and services in the areas of prevention; care and treatment; patient involvement and choice; and research.
Latest news:
21 July 2010
The Group met Professor Sir Mike Richards on 21 July 2010, to discuss the Cancer Reform Strategy. Professor Richards has been asked to review the Strategy by the coalition government, to set its direction until 2015.
Brain Tumour UK has emphasised the importance of recording all brain tumours in official registries, increasing early diagnosis and ensuring that social care is improved for anyone affected by a brain tumour once they leave hospital.
Professor Richards will report on his review later this winter.
Cancer 52
Cancer52 is an alliance of 41 organisations. It works to address inequalities in policy, services and research into the less common cancers and to improve outcomes for patients with these highly challenging diseases.
Latest news
10 September 2010
Cancer 52 met Professor Sir Mike Richards on 10 September 2010, to discuss the Cancer Reform Strategy. Professor Richards has been asked to review the Strategy by the coalition government, to set its direction until 2015.
Brain Tumour UK has emphasised the importance of recording all brain tumours in official registries, increasing early diagnosis and ensuring that social care is improved for anyone affected by a brain tumour once they leave hospital.
Professor Richards will report on his review later this winter.
9 June 2010
With Cancer 52, Brain Tumour UK took part in a major consultation on the National Cancer Survivorship Initiative. With the help of brain tumour patient Neal Challice and his wife Sara, we emphasised the importance of a clear pathway for care beyond hospital.
Brain Tumour UK regularly hears the concerns of patients, and their carers, who find that there is very little support for them beyond hospital.
The quality of social care varies depending on where people live. A common issue is that there is no-one with the skills to understand and support the rapidly changing needs of brain tumour patients.
National Voices
National Voices is a coalition of more than 200 national health and social care organisations, giving a stronger voice for all those who come into contact with the NHS and care services, and the voluntary organisations that help them.
It works to ensure that patients’ and carers’ voices are heard and that they influence decision makers in England to ensure people are partners in their care: with more choice, control and autonomy in the way they receive services. This results in better quality care, higher satisfaction with services and better value for money.
Latest news
16 September 2010
Brain Tumour UK supported National Voices' annual conference on 16 September 2010 in London, which included Paul Burstow, Minister of State for Care Services. We emphasised how social care for brain tumour patients must be improved, recognising that their fast-changing and often significant needs can make them amongst the most vulnerable in the health and social care system.
Neurological Alliance
The Alliance campaigns nationally and through 20 regional groups across England to raise awareness of neurological conditions, ensure access to joined-up, high quality services and ensure implementation of the National Service Framework for Long Term Neurological Conditions.
Scottish Parliament Cross Party Group on Cancer
This Cross Party Group exists to keep Members of the Scottish Parliament up to date with cancer-related issues. Brain Tumour UK's development officer for Scotland, Gus Ironside, has been invited to brief MSPs on brain tumours in one of the Group's next meetings.
