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Patients and carers are heading to Parliament today to ask MPs to help raise awareness about brain tumours and to use their position in Parliament to get the Government to do more in the fight against them.
Around 200 patients, carers, scientists and doctors will join the mass lobby, organised by the Brain Tumour Consortium of which Brain Tumour UK is a founding member. They will tell MPs that brain tumours are not getting the priority they deserve and that government policy should reflect the fact that:
Jenny Baker OBE, Chief Executive of Brain Tumour UK said: “We are calling on MPs not to forget brain tumours and to do what they can to ensure that a fairer, more proportionate amount of research spend is devoted to brain tumour research, that under the new NHS structures NICE’s best practice guidance is finally implemented and that health workers are given the support they need to make prompt, accurate diagnosis of brain tumours. It is only by making advances in all three of these areas that outcomes for people with brain tumours will start to improve. The first step in doing this is to get MPs and Government to understand just how many people are affected by brain tumours.”
Today the lobby is not necessarily asking for more Government money. What is needed is a better understanding of the severity and incidence rate of brain tumours so that existing resources are allocated more fairly and effectively.
As a first step, MPs are being encouraged to improve awareness about brain tumours by pledging to sign an Early Day Motion, signing an e-petition, and to do more to promote awareness of brain tumours in their constituencies and to participate in meetings of the All Party Brain Tumour Group.