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Our Trustees

Financial experience? We need you!

The Trustees of Brain Tumour UK are responsible for its strategic direction and governance. We are looking for an Honorary Treasurer to join our Board and help shape our future.
We'd be particularly interested to talk to you if you have senior level experience in financial management. Board level experience is desirable but not essential and training will be given. For an information pack, please email Jenny Baker at jenny.baker@braintumouruk.org.uk.

 

Meet the Brain Tumour UK Trustees

Brian Hayes - Chair
Brian is Chief Executive of Charnwood Council and brings the experience, skill, personality and commitment required to lead the charity forward with integrity and imagination.

Ella Pybus Ella Pybus
I have experience of living with a brain tumour. My motivation for choosing to act as a trustee for Brain Tumour UK comes from my sense of frustration over the treatment of and support for people with brain tumours. Many of the difficulties patients face could be overcome by more investment in research, having more specialists and better NHS aftercare. I want to see the same success in treating brain disease as has been seen in cancer care. I am excited by Brain Tumour UK’s determination to work hand-in-hand with the medical profession towards better treatments, and to provide support and information across the country.

Julia Oliver
Twelve years ago I had a large meningioma on the brain stem that was successfully removed at The Maudsley so when I saw the advert for Brain Tumour UK Trustees I knew I had to apply. I remember how much my family suffered with little or no support when I was diagnosed and I want to make a difference. My background is Human Resources so I hope to be able to help Brain Tumour UK with organisational questions and recruitment. I have worked on a number of Boards for charities previously so I am also interested in strategic thinking and business planning. I am pleased to be involved with Brain Tumour UK at such an exciting time.

Elizabeth Preston

Elizabeth is Head of Service for Cancer and Palliative Care at NHS Lothian University Hospitals Division in Edinburgh. Elizabeth is a neurosurgical nurse by profession, having trained at Guy's Hospital, London & Addenbrooke's Hospital, Cambridge. She was enthusiastic to become a trustee of Brain Tumour UK as a result of reading our newsletter, Target.

She hopes to contribute to the success of the charity through communication and improved services for patients and their families. "I have a desire to ensure that patients and their families receive the optimum care and treatment regardless of location in the UK, borne out of personal and professional experience in the speciality. I hope that my breadth of NHS experience and network of contacts will prove useful to Brain Tumour UK and I look forward to driving the charity forward to achieve its aims."

Angela Deacon

Angela is a solicitor and widow with 2 grown up sons running her own business "For 25 years everything was going swimmingly when my husband was struck down with a brain tumour very malignant (grade 4) which took his speech away then his mobility and finally his sight There was very little information I could find about brain tumours and my GP had never dealt with one so it was a steep learning curve. I amassed as much information I could about brain tumours while caring for my husband. I now want that information (and correct information) to be there for all patients and carers. without the battling!" As a lawyer (LLB), Angela hopes she can contribute.

She looks for the time when these tumours can be cured. She would like the charity to grow so that the public are aware of the condition of brain tumours and wish to contribute to finding a cure. She is passionate that all patients are treated with dignity and are given the full facts

Caroline Batt

I had surgery for a meningioma in 1993, and more surgeries and radiotherapy after its recurrence in 1998. My frustration about the lack of information and support for people with a brain tumour grew out of this experience and led to the joint foundation of Meningioma UK, the first national meningioma support group. More recently, I have become a trustee of Brain Tumour UK. My motivation is to make information about brain tumours and support groups more widely available. Also, I believe that more investment should be made in the dedicated NHS services, for specialists as well as specialist nurses, and that there should be increased research into brain tumours. The results of such research should benefit brain tumour patients and be made available to people with brain tumours so they can better understand treatment options.

By training I am an academic veterinary surgeon, originally from the Netherlands, but I have been working in the UK for twenty years, and have been much involved in clinical research. I see my work with Brain Tumour UK as drawing on my experience. I want to help to further research into brain tumours and making research findings available to people with brain tumours. I also want people with brain tumours to enjoy better and easier access to information and support, which Brain Tumour UK can supply.

Richard Eaton

Following a referral by an alert optician, my brother, Edward, was diagnosed with an astrocytoma brain tumour at the age of 10. Four years on, and after three operations, two rounds of chemotherapy, a course of radiotherapy and a brush with meningitis, he continues with his recovery and is now back at school part-time.

Family support was vital in getting through our difficult time, as was the the support of local groups and national organisations. I was unaware of Brain Tumour UK or the work that they did; it was only through a magazine in the hospital that I discovered a charity dedicated to support the sufferers of this type of illness and the advancement of treatment and research – once I knew about it I had to be involved!

I have joined the board of trustees to be in a position to accomplish two key goals:
1. To further the development and research into brain tumours to enable more effective diagnosis and treatment;
2. To enable effective and meaningful support to patients, families and carers impacted by the effects of a brain tumour.

As a trustee, I look forward to helping to continue the excellent work the charity has done to date, and to achieving the goals above and many, many more besides.

Sam Turner Sam Turner

Sam is head of development at the National Council for Palliative Care. She manages the team at head office whilst fundraising and developing partnerships in order to increase the effectiveness of the organisation and develop more equitable palliative care services.

Sam has a background in diversity issues, working to combat the discrimination of older people and ethnic minority communities at the Policy Research Institute on Ageing and Ethnicity. She has also worked on several international research projects looking at the provision of health and social care for disadvantaged communities and believes passionately in equitable access to good quality healthcare for all. She is delighted to be joining the board at Brain Tumour UK and hopes to be able to contribute to the development and effectiveness of the organisation in the years to come.

Sam Turner Robert Posner

Anyone who has been close to one of the 49 people who are told every day that they have a brain tumour, knows how devastating this news can be. It is probably a little known fact that there are more people dying now from brain tumours than ten years ago; and more children die from a brain tumour than any other childhood cancer.

As a trustee, I am keen to use my background in marketing and communications, and my personal experience, to help Brain Tumour UK become recognised as the most effective and innovative charity supporting patients and their carers and  campaigns for further research, better care and treatments.

Maryanne Roach Maryanne Roach

My motivation for joining Brain Tumour UK was not one of personal involvement – I chose this charity purely due to the nature of the conditions, their impact on sufferers and the highly professional and successful operation of the charity.

My working life has revolved around the pharmaceutical industry; I have worked within several pharmaceutical companies, where I was responsible for provision of medical information to healthcare professionals (including highly technical data relating to oncology products) and assisted in the management of clinical trial programmes.

I have also worked extensively in the sector which provides services to the pharmaceutical industry, notably marketing research, business intelligence and benchmarking. Most recently, I was managing director of one such small company, so I intend now to channel my business experience, as well as my industry knowledge, towards the achievement of all of Brain Tumour UK’s aims.

Ian Wingfield Ian Wingfield

A few years ago, I had a health scare when it was thought that my constant headaches and dull aches in my head might possibly be caused by a tumour. After a scan, I was, thankfully, given the all clear, but for the period of time it took to get this diagnosis, I was a bag of nerves.

I see my role as Trustee as primarily one of education, alerting people to the work of Brain Tumour UK so that they need not be in fear and can share their concerns with those who have lived through such experiences themselves or with a loved one. I am a local councillor and my professional background is in public affairs and communications; the skills I have developed for over 20 years I wish to devote in increasing our profile.

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